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Post Info TOPIC: AH diagnosed with Cirrhosis


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AH diagnosed with Cirrhosis


This is my first post to a message board I have been reading a very long time.  August 9, 2011 I took my AH husband to the emergency room with a belly as big as a 8 month pregnant woman.  His eyes were yellow, he has lost all his body weight, muscle mass, etc.  He bascially stopped eating and would drink from the time he got up to the time he passed out (which usually wasn't early, he ended up with his days and nights mixed up). Since this date he has had his belly drained 3 times, this last time was just Sept. 9, 2011 and they took almost 2 gallons of fluid from his belly.  He had to stay in a nursing home for almost 2 weeks for physical therapy rehab.  He is now home.  He hasn't drank in since this happened.  Up until that point he drank vodka on a daily basis at least half of a litter each day of his life for the past 15 years (maybe more). The past 3 years have been a nightmare.  He quit his job and did nothing but since on his butt, watch tv and drink and drink an drink.  Now that he has almost killed himself, here I am.  A man I have been with for 25 years (we are high school sweethearts), I stood by this man for the last 30 something days while he has been ill.  Mind you I have been begging him for years to get help.  I know he is going through things that I will not and cannot understand but you would think that everything I have done for this man including file for disability, ssi, work, take care of the house and our animals.  Not once has he acted the least bit grateful for anything.  I could go on and on and on but I'm sure I'd run out of space at some point.  I have no family, I'm an only child.  His family had no ideal what was going on until August 9th.  I'm doing this alone and just don't know how to handle or deal with this.  I ran myself ragid (sp?) to keep things together while he was in the hospital and nursing home all I could think about was him coming home.  Now that he is home he acts like he could care less about me or making it or anything in general.  He is having mental problems, confusion, saying things that didn't happen, very cold towards me, yells at the cat just for meowing, weird things.  I know he's angry and I know this is not going to be easy.  He has been told he can never drink again or he will die, he still is not out of the woods yet.  He is getting back into the routine of not doing anything again, laying around and watching tv, thankfully he hasn't had a drink but I'm a little unsure how long this is going to last.  I have told myself to leave if he does.  How do you all get through this.  I find myself feeling mad, sad, angry, hurt, scared as all heck but as time goes by the more I feel this fire in my belly and it's staring to grow into a forest fire.  I'm working and barely treading water, I pay all the bills, I clean the house, I feed and walk the animals, I do pretty much everything but don't let one bill go unpaid or all hell breaks loose and it's my fault.  I'm starting to feel like I just run away to an island and never come back.  I'm super glad he made it out of the hospital and he's able to somewhat get around but now I feel like why did I do all those things if he's still gonna treat me like doodoo.  I need a hug, a need a friend and I'm so tired of feeling this way.  I'm 43 and feel like my life is just passing me by. Why should I care so much if he isn't.  I know he doesn't feel right or good and I know he's scared but so am I.  He created this damn mess not me.  I begged him for years to stop, I saw this coming, I truly did and now that it's here what and how do I handle this.  no To top this all off he knew we didn't have insurance.  When he quit his job we lost it.  I work but can't afford it.  So yes, I had to take him to the emergency room knowing he wasn't covered and now I'm even unsure what the heck is going to happen with that.  I can't afford to pay a 100,000 hospital bill.  Now I'm responsible for this and the best part of all of this is I don't drink.  I grew up with AGP, AU whom all fought cussed each other out, my grandparents even took me to bars when I was a little girl.  Now as an adult I have a AH,,,,the only thing I can think of is I must have been a very bad person in another life.  Thanks to all whom are reading and thanks for letting me vent.  Any advice would be greatly appreciated. 



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~*Service Worker*~

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((((Woodenships))))...there is your hug (cyber but real cause it comes from my heart and my spirit and my emotions and my experiences) ...we are your family and are glad you are home.  You are not alone in this and I am grateful to feel empathy, compassion and gratitude for you coming in from the disease.  We know about him and we know about you and it is you that we can help if you are willing to sit and listen and learn and follow what we learned and did that saved our lives and minds and spirits and emotions.  We who have crawled, walked and ran to get help.

Alcoholism is a fatal disease and I am powerless over it and when I try to enact any sorts of control or management over it I fail and go crazy and loose everything I felt was important plus many other things that were and didn't know about.

Who can help him?  A God of his understanding and a recovering alcoholic who is working a program of recovery.  The way I contacted God was by screaming out for help and then I was helped...simple.  How you reach a recovering alcoholic who is working a program of recovery...call the AA hotline in your area from the white pages of your telephone book and ask if they make house calls and if they do give them your address and step out of the way.  There are no guarantees what will work and this is a chance that otherwise might not be attempted.  Last one I was envolved in the man has now over a year sober if he is working it today.

You paint the picture of the physical condition of one of my alcoholic relatives before he passed on because of alcoholism.  Alcohol addiction and abuse is the sustained use of a mind and mood altering chemical that affects every part and organ of the body and if not arrested by total abstinence will destroy those organs and parts and cause death in the drinker.  Your husband seems to be at "end stage" alcoholism as you describe it...so I will do all I can...pray and give my experience, strength and hope to you and him.  We are powerless over him and can only invite you in to share what we have found.  Please come in, stay and keep coming back.   Find the hotline number for the Al-Anon Family Groups in your area and run to the nearest face to face meeting where you will meet some of us as we learn to walk the journey.

Keep coming back to MIP...Glad you spoke up...find out I can still weep.  ((((hugs)))) smile



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What a terribel position to be in.

Here's my background.  After 7 years of living with my now ex A he was diagnosed with Hepatitis and a really mad form of Muscular Dysthrophy.  He could not work.  Needless to say as he's a stubborn person he wouldn't put in for Social Security either.  The diagnosis came after years of binging on drugs and alcohol.  His whole adult life has been drugs and alcohol but he always blamed others (his mother, his then girlfriend, his brother, you name it he blamed them). 

Our finances (such that they were) went to pot.  We eventually got evicted from our home of 7 years.   He goes completely nuts, puts his stuff in storage and lives in the truck I bought him with our two dogs.  By then I had left him believing his story he would move in with relatives some 75 miles from where he lived. He didnt' do that. Went there one day and came back and mooched around living in a truck with two dogs in blistering heat.

I end up paying for him to stay in a trailer (that's all he would accept) where he continues to have chaos and crisis all the time.  He hit and ran a guy in a car.  Luckily the man was not injured. He went to court for that.  Then he fully expected me to pay for everything and called me day and night about every little thing in his life.  Meantime he totals the truck he had been living in.  So he had no transport and feels like a victim.

I can go on and on.  I put this out because I wanted you to know you are not alone.  Many alcoholics/addcits totally destroy their entire life.  The issue is by then they are pretty far gone.  Some of them do indeed get sober at that late stage.  Some don't.

I ended up taking the dogs and finding a home for them with me which was pretty difficult on what was then no income.  The ex A went to live with his mother in another state and no doubt made her life incredibly difficult.  He still expected me to pay for everything even though he stole from me and more.  I stopped paying but it was a long long time before I got to that.

I'm so glad you are here.  Al anon can help you a lot. Come here as much as you can and post. Go to the chat room when you are lonely and sad. When I first got here, before the ex A went into his rapid decline I felt absolutely morbund with rage, fear, grief and exhaustion.  I found great solace in the chat room. People were incredibly kind to me.

If  you have a chance get a hold of the book Getting them Sober. 

The more you can get involved with program the more tools you can learn and the more manageable your life can become. Without this place I would simply have gone under.

 

Maresie.

 



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maresie


Senior Member

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Posts: 288
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Hello Woodenships and welcome ~ I just wanted to welcome you and tell you I'm so sorry for what you're going through and appreciate your sharing your story with us. I think you will find as Jerry and Maresie said, that you're not alone and that there is a lot of experience, strength and hope for you. I really hope you will find a lot of the hugs and friendship you need here along with the tools to heal. I'm sending prayers for you and your husband.

~ Doozy

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I am glad you are reaching out.

All I can do is share experience, and I have had too much  in my life.

I am guessing what you need  is comfort. For me that comes from the truth.

You fell in love with an addict. He did not choose to be one. No one does. It isn't nor was it ever his fault he is one. All that has happened to you all, was from a horrible, horrible disease.

It is no more personal than cancer or Lou Gerigs disease. He did not create anything, he is no more responsible than I am.

The disease is not something they can just stop. Not all addicts get a chance to try to go into recovery!

It is not curable.

He is in the last time of his life. When it gets to this stage, there is not much time.The reason he has not been acting the same the last few years is his liver was breaking down from the horrible abuse that alcohol makes on ones body. He could not stop!

So that means his brain has been compromised for a very long time. It takes time for the liver to get this bad. All those lesions on and in his liver from it trying to filter all the impurities, left wounds. Those wounds heal into scar. Scaring does NOT filter. so all those poisons have gone thru his body and his brain causing insurmountable damage.

I am sharing this with you to help you see, it's not the A we hate, its the disease that caused the horrible behavior we hate.

It makes them think things that are true are not, they may hallucinate, see things that are not there, be very irritated by simple things. He does not comprehend about bills or chores or anything anymore. He probably does not think about thank you and love or gratitude

He is brain damaged. NO one who has gone thru what his body has can not heal from this.

My experience was, when I learned this, knew it to be true I was able to face all the horrors of it and not blame him one bit. I lost everything, cept my spirituality.

I am not bitter at all. Mine is still out there being an insane brain damaged person.

We have no idea how he has lived this long.

His brother died in my arms from cirrosis. Besides filtering the liver has to do with clotting. My bil, did not live, could not get healthy enough to survive a transplant. He had been clean for many, many, many years too! He bled from every poke, from shots, iv's, everything.

It's serious, I knew it was no time to be mad, worried about money, or no one telling me thank you. Whe we realize the truth, it hits us hard. All that other inconsequential stuff, just does not matter.

ONE day at a time. If you don't sign paperwork in your name, most states cannot hold you responsible. Also most all hospitals have a program that all the bills can be written off, reduced etc.

There is no use thinking about the future.

It has helped others to take care of themselves. Get away from it, have other family members stay with them.

I feel so so much for you. Been in your shoes and worse. bil's mother called this famous major hospital andtold them not to let me in with him! Was he or anyone else from his family there? NO. I was with him amonth, taking the bus, friends taking me up there, sleeping on two chairs in the waiting room, washing in the bathroom sink,

Reading to him, crying with him, reading the Bible, listening to the crazy things he said.

It was one of the most precious times in my life. And his family hated me for it, but they were NOT there.

Hey bless you for hanging in and being there! It is not a have too uno. many would walk away. You are a testimont to your love.

BE true to yourself. Love is forgiving and kind, patient, does not keep account of injury, it does not fail!

This time is so precious honey. I know you are exausted so take time for you. Its ok to ignore the things he says. take a breath, tell yourself it is the disease talking and it does not matter.

I am so sad for you all! Keep coming back and venting. We get it, believe me.

And I wonder has mention of a transplant been offered? He is so young.

sending you love and prayers, debilyn



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Putting HP first, always  <(*@*)>

"It's not so much being loved for ourselves, but more for being loved in spite of ourselves."

       http://www.al-anon.alateen.org/meetings/meeting.html            Or call: 1-888-4alanon



~*Service Worker*~

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Hi,

I am glad you have reachout and posted on the site.

This disease is the worse thing I have experienced in my life and trying to face it alone was impossible.  I am sorry to hear that your Husband is so ill and hope his HP brings him the support he needs also.  This is a family disease and we need to protect ousrelves.  People in al anon understand what you are experinceing, I really hope you do something for you and get yourself to a meeting you do not have to talk you can just listen.  It was the best choice I have ever made.  We can not cure the drinker but I know you will find lots of love and support hope you do not isolate and try and deal with this on your own ..hugs tracy xxx



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he is grateful. he is just sick, and there is probably a huge difference to what he feels inside and to what comes out of his mouth. please dont think he doesnt love you or hes not grateful because he really does,,, he just doesnt show it thats all.
i nce said to my mum, "why do you still see me if you hate me that much?" and it broke her heart, she could believe i felt this way.....because this was so far removed frm her tru feelings. they are just extremely sick people, and often have no control over their behaviour or things they say- when they are sober its still the same.

i think yu are doing a grand job.

xxx

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rosie


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Hi and welcome here (((((HUGS)))))
Alanon is just for you. We can support you in your journey to recovery. If you can, go to some alanon meetings, you will find you are not alone anymore and that people there will understand what you are going through better than anyone else. When you begin to work on yourself and focus on you, find a sponsor and work through the steps, you may begin to see changes happening, little by little in yourself that can affect him.
You didn't cause him to drink, you can't control the drinking or the alcohol, and you can't cure him. Alanon is for you, to recover from the affects of alcoholism. Take care of you :) HUGS!!!!! :) This program of spirituality works when we work it :) You are so very worth it!!!

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Let go and let God...Let it be... let it begin with me... 

 



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Thank you all for your kind words,,,,I've been a lurker of this message board for a very long time.  This disease is just awful,,,,I would never wish this situation on anyone.  He is young, that's what all the nurses would say to me.  At this point he is home, he is not drinking but I'm sure he thinks about it.  He's not feeling so good, he coughs a lot and has fluid building up again.  It's nice to know there is somewhere to go to vent or share my thoughts.  I try to not take the things he says or does to heart but I guess just not understanding the disease itself it's hard for me to understand.  His mind is not the same.  It's very scary to see someone you love and have been with since you were 18 be so different and look so different.  One of the nurses in the emergency room actually asked me if he was my dad confuse.  He's angry all the time.  He gets mad at our cat which is 16 just for meowing.  I feel like I walk on eggshells.  One minute he's hungry, I get up to make something then he gets po'd because it's either not ready (in 2 mins) or he decides that's not what he wants or he will just throw it across the room.  I try not to react, one of the post said he is brain damaged, this I do believe because now that he is home and moving around, belly still filling however it is almost like dealing with a person that has been hit in the head.  One of the nurses told me if he doesn't get it back within 6 months he never will.  That's the thing with the nurses, they would all tell me different things.  This whole situation is just awful,,,,just awful.  His family had no ideal any of this was going on until the day I took him to the emergecy room and even then his brother and I didn't tell his mom EVERYTHING until just a few weeks ago.  They all ask me "why didn't you tell us", I always felt like I had this huge secret that noone knew.  Now I feel awful about that, but I keep asking myself what the heck would they have done that I didn't try already.  One thing I have learned through this experience is someone who drinks will not quit unless they are ready.  The only reason he was ready on August 9th was because he couldn't breath.  His belly had filled so much with fluid that his lungs collasped (sp?).  Today his color has came back somewhat and his eyes have cleared up some.  He is still not eating though.  He gets angry when I press him to eat.  His potassium level is low, very low.  His blood pressure runs very low.  He is trying, I see him moving around some almost like self rehab but if he doesn't eat he's not going to be strong enough to do anything.  He got to that point before I took him to the hospital, he could hardly make it down the hall to go to the bathroom.  I had to lay him on the floor to dress him the day I took him in.  They told me he had about a week to live if I didn't take him that day. I'm trying to stay positive but I'm so unsure if he will even be here this time next year and I'm trying to enjoy the time I have with him.  I'm trying to ignore the anger, the hatred because I do see the real person in there.  Thank you all again and you will be seeing me a lot around here now that I found you all! (((hugs to you all)))



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~*Service Worker*~

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I hope you do come back a lot. It's ok to be mad!!! You can share all the thoughts, we have had them too!

I still want to go ask my husband where did my husband go? Who the H are you???

Have you called the doc and told them he is not eating? The thing is  his liver is not working, so eating, drinking I don't know how it would help.He may need to be on an IV. Makes sense to me. I mean even animals go on an IV for that.

To be very honest with you, I don't understand why they sent him home. With these symtoms, well it's VERY serious.

Do you know how to take blood pressure? I don't know how much you want to do yourself. If he is throwing things, and not safe, which it sounds like, you may want to call a doctor.

This is NOT something you want to do alone!!!! I don't know you,  wish I did! oh I am going to pm hon....deb



__________________

Putting HP first, always  <(*@*)>

"It's not so much being loved for ourselves, but more for being loved in spite of ourselves."

       http://www.al-anon.alateen.org/meetings/meeting.html            Or call: 1-888-4alanon



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Deb,,,lol,,,I've ask him that same question a thousand times in my head of course.  Where did the real person go? He has no interest anymore, we do absolutly nothing and when I get home from work he's so angry. 

He was in the hospital for almost 2 weeks and the day he got out they had him on a potassium (sp?) iv due to his level being so low.  He then went to a nursing home for 2 weeks for rehab due to him not being able to walk and being so weak.  He started eating there only because I would bring him food everynight to eat.  I started taking him shakes and smoothies he got sick of them.  The last Dr's visit he was told to eat 2 bannana's a day due to his potassium level being low sill.  He refuses.  He does try I will give him that but he says he can't eat.  This is a man who use to weight 180's now weights 159. When his weight does go up it's all fluid then we kinda know it's time for draining again.  The hospital wanted him out and I had to come up with $5300 dollars to get him into the nursing home which only covered room and bored not the rehab.  This whole experience is just awful.  The not knowing if he will get better, if he'll be here next year, how I'm gonna get through all this, how I'm gonna pay the bills, take care of things and be on my own,,,this is all very scary and not what I signed up for 25 years ago.  I look at our prom pictures and I see someone who just isn't there anymore.

I'm going to purchase a blood pressure machine and I've been taking his temp daily, usually runs 98, 99. I learned a lot from being at the hospital and nursing home, even his feet were so swollen they looked like elephant feet.  They have gone down since the last belly draining but everytime I ask the doctors if this is something that he will have to do for the rest of his life they just say they don't know. 

I thought I was all alone in this but the more I read the more I hear it's just amazing to me how many people are going through, have gone through and will go through this very same thing.  How do you all get through it? How do you make it.

 



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