At least I got a a little more information and some sticker shock as well as my girl got some valuable information. In the form of learning curve .. this is all good.
So the GP explained a great deal that the dumb neurologist did not .. ugh. We are not closer to a diagnosis however we at least got her another refill of pills as well as an explanation as to why we can't get them easily.
I talked to this Dr he explained a few things and the light bulbs came on pretty quick for me. He laughed and said apparently I speak your language and you are versed and I explained what I went through with my daughter's dad and his eyes lit up and said .. no clonazepam for her .. I said NOPE. He was responsive and said .. I can get her 20 pills ok .. each visit? No. TOTAL. I was like WTF?! Thanks to the lack of previous checks and balances and people like my X .. this is what people who use responsibly have to deal with now .. so hopefully we will continue to have good success of getting her into the Dr's.
As she's never had a health crisis like this one .. so I am walking her through and she is overwhelmed .. doing well .. just overwhelmed. So the Dr addressed us both and said he's going to send us out with a recommendation.
Let me backtrack and give you an idea the hoops I went through to get this Dr. First off I called and got a very nice young lady .. I told her the name of the Dr. I wanted and she comes back with oh I have you scheduled today at 330 with Miss H. Umm .. I stop her .. is that the Dr? Well no .. that's the PA .. ok .. so why didn't you schedule with the Dr? He's not accepting new patients at the moment .. OMGOSH .. I was not a happy girl .. so I calmed down a bit and said .. ok .. so you didn't think to start off with that information first? She says well Miss H. is a really good PA .. I said ok .. so based upon what I shared with you .. your kid is exhibiting Tourette like symptoms .. would you want to speak with a Dr or a PA? Just asking. I got her a Dr's appointment with this guy. Which I get the name and shudder after what I went through Friday .. and I apologized first .. I am so going to sound racist and this is not what I mean by what I'm about to say .. does he speak English? Wait. Is English his first language? She actually did start laughing .. and I was no seriously after my Friday experience I'm am honestly just more aware .. we had a very bad language barrier and he upset my daughter so much she was in tears and close to a full blown panic attack. She just said she understood and really got what I was saying.
So .. yes .. the man spoke English very well .. LOL. If I can't understand someone and I need a translator that's not the right place for me to be .. I physically wanted to punch Friday's Dr after what was said and done. I was frustrated this is all so scary and then to be told sorry know your daughter needs this I'm not going to give it to her .. I'm telling you .. WOW.
The MRI is scheduled next week along with two kids going back to school I almost threw my lunch up when the gal said oh by the way .. it's 512$. I was umm .. oh no .. there is NO way we owe that on the deductible. Not at this point. Well I had to laugh because sure enough she was kind enough to put me on hold and check it dropped to 175$ not great however I'll take it. I am not seeing this other Dr again because I think I need to pay again for the follow up. I won't be pleased.
The next step is to get her scheduled with the shrink and try to get her in before the issue of her meds running out. I am also trying to find someone who will work with her on alternative medicine instead of doping.
At least I have a better understanding of why we couldn't get the pills she needed although I still swear the guy was an ass. Well meaning ass .. however an ass. He should have been able to tell I was not feeling it.
We have a family dr as well so that's a good thing too. I know I need to get my son in for a physical so that would be the place to do it.
Anyway .. I can breathe for a few days and she has a plan on how to take those pills and that's what she's going to work on. My job is to focus on finding a Dr and getting her into the counseling program at school.
Sooo .. I think we have a good plan of attack .. and she seems to be very settled after this appointment .. for that I'm grateful.
Hugs S :)
a4l said
Aug 7, 2017
Hugs my friend. I would so want you in my corner dealing with the health system. It's a marathon versus a sprint when dealing with systems in my experience, so make sure your self care is prioritised too. Food, rest, positive self talk. I'll have my fingers crossed for your girl. X
Junenine said
Aug 7, 2017
just saying well done and wishing you and your daughter well! you're a great advocate for her. doctor land is so often a maze of craziness...! glad you can have some relief and rest now for a bit.
PosiesandPuppies said
Aug 7, 2017
What a crazy ordeal!! Thank goodness you are tough and won't just accept any answer a doctor will give. In today's world, it really does help it you are a strong advocate for yourself (or your daughter as the case may be). I am so happy to hear your daughter is more settled. She needs that to deal with the rigors of starting school.
Prayers your way!
P
hotrod said
Aug 8, 2017
((Serenity)) Sending positive thoughts and prayers along the way Your daughter is fortunate to have you in her corner.
Iamhere said
Aug 8, 2017
(((Serenity))) - thanks for the update....I agree with above - you'd be a marvelous person in my corner for navigating the 'system' of health care. Sending you tons of (((hugs))), positive thoughts and prayers....for your daughter as well!
SerenityRUS said
Aug 8, 2017
Thanks .. I am beyond frustrated at the moment and live with the fear that they will just cut her off without warning from what she needs at the moment even though I know it's temporary. I have got to get her into school I feel like this is a huge hurdle if she gets through will make a big difference.
I keep praying that we continue to be blessed with the fact that somehow we just get in when we need to and keep rolling that way.
For the moment I have decided to wait on the MRI until I get another neurologist because I'm not paying another 300$ (this is for the MRI plus the Dr visit and not be able to understand the guy.
I look at her age and how I would have been terrified if I had to do this alone and not know what to ask .. I watched a very young girl years ago .. go through something similar and it ruined her for the rest of her life .. it was awful. I don't want my daughter to be afraid to speak up for herself and even argue with me if she feels she needs something different. As long as she has a good solid logical reason I am willing to back her up and we are seeking out alternative treatments at this point to help her. Again .. I might find out the next script will be cut off. Who knows.
It is so real now how broken the health care system is for mental health and that is so sad for others who can't advocate or know where to look for different things.
Thanks for being here just getting this stuff out makes a difference.
I forgot that my poor son starts school Tuesday and I have nothing for him .. no supplies, no schedule, no nothing .. UGH UGH UGH!! Sigh .. parenting fail .. a reasonable one however a fail none the less.
Hugs S :)
-- Edited by SerenityRUS on Tuesday 8th of August 2017 08:22:09 AM
bud said
Aug 9, 2017
(((SerenityRUS))) Sending prayers and positive thoughts.
At least I got a a little more information and some sticker shock as well as my girl got some valuable information. In the form of learning curve .. this is all good.
So the GP explained a great deal that the dumb neurologist did not .. ugh. We are not closer to a diagnosis however we at least got her another refill of pills as well as an explanation as to why we can't get them easily.
I talked to this Dr he explained a few things and the light bulbs came on pretty quick for me. He laughed and said apparently I speak your language and you are versed and I explained what I went through with my daughter's dad and his eyes lit up and said .. no clonazepam for her .. I said NOPE. He was responsive and said .. I can get her 20 pills ok .. each visit? No. TOTAL. I was like WTF?! Thanks to the lack of previous checks and balances and people like my X .. this is what people who use responsibly have to deal with now .. so hopefully we will continue to have good success of getting her into the Dr's.
As she's never had a health crisis like this one .. so I am walking her through and she is overwhelmed .. doing well .. just overwhelmed. So the Dr addressed us both and said he's going to send us out with a recommendation.
Let me backtrack and give you an idea the hoops I went through to get this Dr. First off I called and got a very nice young lady .. I told her the name of the Dr. I wanted and she comes back with oh I have you scheduled today at 330 with Miss H. Umm .. I stop her .. is that the Dr? Well no .. that's the PA .. ok .. so why didn't you schedule with the Dr? He's not accepting new patients at the moment .. OMGOSH .. I was not a happy girl .. so I calmed down a bit and said .. ok .. so you didn't think to start off with that information first? She says well Miss H. is a really good PA .. I said ok .. so based upon what I shared with you .. your kid is exhibiting Tourette like symptoms .. would you want to speak with a Dr or a PA? Just asking. I got her a Dr's appointment with this guy. Which I get the name and shudder after what I went through Friday .. and I apologized first .. I am so going to sound racist and this is not what I mean by what I'm about to say .. does he speak English? Wait. Is English his first language? She actually did start laughing .. and I was no seriously after my Friday experience I'm am honestly just more aware .. we had a very bad language barrier and he upset my daughter so much she was in tears and close to a full blown panic attack. She just said she understood and really got what I was saying.
So .. yes .. the man spoke English very well .. LOL. If I can't understand someone and I need a translator that's not the right place for me to be .. I physically wanted to punch Friday's Dr after what was said and done. I was frustrated this is all so scary and then to be told sorry know your daughter needs this I'm not going to give it to her .. I'm telling you .. WOW.
The MRI is scheduled next week along with two kids going back to school I almost threw my lunch up when the gal said oh by the way .. it's 512$. I was umm .. oh no .. there is NO way we owe that on the deductible. Not at this point. Well I had to laugh because sure enough she was kind enough to put me on hold and check it dropped to 175$ not great however I'll take it. I am not seeing this other Dr again because I think I need to pay again for the follow up. I won't be pleased.
The next step is to get her scheduled with the shrink and try to get her in before the issue of her meds running out. I am also trying to find someone who will work with her on alternative medicine instead of doping.
At least I have a better understanding of why we couldn't get the pills she needed although I still swear the guy was an ass. Well meaning ass .. however an ass. He should have been able to tell I was not feeling it.
We have a family dr as well so that's a good thing too. I know I need to get my son in for a physical so that would be the place to do it.
Anyway .. I can breathe for a few days and she has a plan on how to take those pills and that's what she's going to work on. My job is to focus on finding a Dr and getting her into the counseling program at school.
Sooo .. I think we have a good plan of attack .. and she seems to be very settled after this appointment .. for that I'm grateful.
Hugs S :)
just saying well done and wishing you and your daughter well! you're a great advocate for her. doctor land is so often a maze of craziness...! glad you can have some relief and rest now for a bit.
Prayers your way!
P
Thanks .. I am beyond frustrated at the moment and live with the fear that they will just cut her off without warning from what she needs at the moment even though I know it's temporary. I have got to get her into school I feel like this is a huge hurdle if she gets through will make a big difference.
I keep praying that we continue to be blessed with the fact that somehow we just get in when we need to and keep rolling that way.
For the moment I have decided to wait on the MRI until I get another neurologist because I'm not paying another 300$ (this is for the MRI plus the Dr visit and not be able to understand the guy.
I look at her age and how I would have been terrified if I had to do this alone and not know what to ask .. I watched a very young girl years ago .. go through something similar and it ruined her for the rest of her life .. it was awful. I don't want my daughter to be afraid to speak up for herself and even argue with me if she feels she needs something different. As long as she has a good solid logical reason I am willing to back her up and we are seeking out alternative treatments at this point to help her. Again .. I might find out the next script will be cut off. Who knows.
It is so real now how broken the health care system is for mental health and that is so sad for others who can't advocate or know where to look for different things.
Thanks for being here just getting this stuff out makes a difference.
I forgot that my poor son starts school Tuesday and I have nothing for him .. no supplies, no schedule, no nothing .. UGH UGH UGH!! Sigh .. parenting fail .. a reasonable one however a fail none the less.
Hugs S :)
-- Edited by SerenityRUS on Tuesday 8th of August 2017 08:22:09 AM